Avery's Bucket List

This last month I heard about a little girl that changed the world. Her name is Avery and she was diagnosed with SMA. Her parents are an inspiration. As a parent I can't even imagine the devistation of hearing the news that your baby has a disease that will quickly take her life. But the inspirational part is that rather then curling up in a ball in the middle of the bed under a mountain of blankets, these parents helped their baby girl live every day to the fullest and created a bucket list for her. How many people I know could actually do that? And the blog, written by her daddy (from Avery's point of view) isn't filled with saddness and dispare. It's filled with love and laughter and the joy of every single minute of her short life! The best thing about Avery's blog? It has brought awareness to a disease that prior to 2 weeks ago, only the families affected by it even knew what it was. Sadly, Miss Avery passed away a week ago. My heart hurts for this loss. Especially for her family but for every person out there who fell in love with this sweet baby girl. Myself included! I guess I just want to say Thanks to Avery and her amazing Mommy and Daddy for bringing the world awareness of SMA and for sharing your lives with us.